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Resource Center Home
| FamilyLink Network
| Discussion Forum
| Facts about Brain Tumors
| Leading Institutions
Treatment Options
| Clinical Trials
| Support Groups and Organizations
| Frequenty Asked Questions
Welcome to the JTHF Online Pediatric Brain Tumor Resource Center.
This site was created to provide factual information to help parents
make critical life altering decisions for their children. It is our hope
that the information found on this site will empower parents to take a
more active role in determining a treatment program for their child that
balances the best available medical care with the best quality of life.
Parents of a child with a newly diagnosed brain tumor are under
extreme stress and pressure to quickly make decisions that have long
term ramifications. Our goal is to present the information in a manner
that is easy to understand, useful and beneficial. Parents can use the
JTHF Resource Center to do research on the latest treatment options and
clinical trials, educate themselves on medical terminology, locate the
leading institutions and get contact information on the specialists on
the specific tumor your child is fighting.
Certain types of brain tumors are curable and others are not. You
need to clearly understand your options in order to make the best
decision for your child. Always get a second opinion and don’t be afraid
to ask questions. Focused research will lead to a cure and new treatment
options are being developed all the time, so do not give up hope.
One thing to always remember is that you are not alone on this
journey. There are individuals, organizations and support groups
available to help you. Other parents that have gone down this path
before you are more than willing to share the lessons learned, you just
need to ask. Hold onto your faith, your family and your friends… you
will need them all.
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