Making a difference in the fight against pediatric brain tumors
 
 
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JTHF is proud to be a founding member of the DIPG Collaborative


The International Diffuse Intrinsic Pontine Glioma (DIPG) Registry is a collaborative effort by physicians and researchers from North America, Canada, Europe, and Australia to centralize and standardize the collection of clinical data and tumor samples from DIPG patients. Cincinnati Children’s Cancer and Blood Diseases Institute is home to the North American operations of the Registry. The goal of this effort is to support innovative research and ultimately find a cure for DIPG. You may visit www.DIPGRegistry.org for more information.

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Jeffrey Thomas Hayden Foundation

Making a Difference in the Fight Against Pediatric Brain Tumors

The Jeffrey Thomas Hayden Foundation is a registered 501(c)3 non-profit organization founded in September 2004 by Timothy and Cynthia Hayden. In January 2004, their 12 year old son, Jeffrey, was diagnosed with an inoperable malignant brain tumor knows as a diffuse intrinsic pontine glioma.

The Foundation goals include supporting research efforts to find a cure for this and all types of pediatric brain tumors, and to provide parents with the latest information to help them make the best decision for their children.

JTHF relies on volunteers and donors to help fulfill our mission. We are always happy to have new volunteers and we gladly accept donations and charitable contributions of any kind for our events and activities.

 
 
Recent and Upcoming Events

JTHF Fall Golf Classic

Save the Date:  Saturday, October 11, 2014

Click here for more information.

 

JTHF Sponsors International Symposium on Pediatric Neuro-Oncology

The Jeffrey Thomas Hayden Foundation is proud to be a Silver Sponsor of the 16th International Symposium on Pediatric Neuro-Oncology (ISPNO) which is being held in Singapore June 28th – July 2nd, 2014.  ISPNO brings the leading Neuro-Oncologists, Researchers, Institutions and Foundations together to present research data, discuss treatment options and explore promising developments in the world of pediatric brain tumors.  JTHF, along with our friends at The Cure Starts Now (www.thecurestartsnow.org) have been instrumental in creating, launching, growing and funding the DIPG Registry (www.dipgregistry.org)  through our participation in the DIPG Collaborative (www.dipg.org).  This group has been instrumental in providing over $3M in targeted research funding for DIPG and we are making the move to be the driving force in making the DIPG Registry the benchmark in the international research community.

Over the next 12 months the DIPG Collaborative, and its dedicated members, have committed $1M to fund promising research projects, clinical trials, and targeted studies to move the bar closer to finding a cure for the most deadly type of pediatric brain tumors.  For ten years, JTHF has been pushing for answers and working with others to find the cash to fund the projects, and it’s encouraging to see so much progress in an area that was virtually ignored for the past 30 years.  At this year’s ISPNO there are over  7 hours of lecture time and 4 hours of breakout sessions dedicated to DIPG and Brain Stem Glioma over the three day conference.  This is a dramatic increase since the last ISPNO meeting in 2012 and shows that our diligence in pushing our cause is getting international attention.

The Jeffrey Thomas Hayden Foundation is proud to be on the frontline in the war against pediatric brain tumors and we thank our supporters, sponsors and friends for helping to make a difference!

 


 


 
Making a Difference


On September 8th, 2004, one month shy of his 13th birthday, Jeffrey Hayden passed away after an eight
month battle with brain cancer.

More about Jeff...

 
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JTHF Fall Golf Classic

10th Annual Book Drive benefits Children's Hospital